The Foundation Receives a $100,000 Research Grant from Sofia Sees Hope
Sofia Sees Hope , a nonprofit dedicated to finding treatments and cures for people with Leber congenital amaurosis (LCA) and other inherited retinal diseases (IRDs), has made a $100,000 donation to the Foundation Fighting Blindness to support therapy development and genetic testing. Sofia Sees Hope was founded in 2014 by Laura Manfre and Charles Priebe, whose daughter Sofia has LCA, a rare genetic retinal condition characterized by severe vision impairment or blindness at birth. The nonprofit organization generates awareness, raises funds for research, and provides outreach, support and education to those affected by LCA and other IRDs. “Since we founded Sofia Sees Hope at our kitchen table more than five years ago, our goal has always been two-fold,” says Manfre. “We have always wanted to support research for LCA and inherited retinal diseases, and to save other families the struggle we went through in pursuit of a genetic diagnosis. It took us seven years to secure Sofia’s genetic...